Please allow me to introduce myself. I'm Jennifer Marshall, James' mom.
My autistic son loves the Rolling Stones. Here he is singing "Sympathy For The Devil". I'm hiding around the corner because he is too shy to sing for you otherwise...
James singing SYMPATHY FOR THE DEVIL
Maybe you know us from:
http://MyOcwenLoan.blogspot.com
Out of the blue OCWEN snatched our home even though I had NEVER missed a payment. We lost our home and got it back in a roller coaster ride from hell.
I'm a single mom and my son James has severe autism complicated by horrible side effects caused by medications that were supposed to help him feel calm and sleep better.
Many medications were "off-label" and those did the worst harm. All of his teeth were destroyed over night when he was given GEODON "off-label" to help him sleep.
Instead of helping him sleep, GEODON made James so insanely hungry that he stayed up all night quietly eating nonstop and when there was no more food, he ate toys, candles, frozen steak...ANYTHING.
GEODON caused an acute imbalance in James' body that gave him an intense hunger that SEEMED like "PICA", but was not true "PICA". He was painfully hungry and ate all the food he could find and then moved to non-foods to ease the painful hunger/imbalance. He was too hungry to wake me up and ask me to cook him something. He couldn't stop eating long enough to communicate. He literally ate NON-STOP.
Watching my son suffer from this hideous man-made hunger inspired me to write a fictional story where a man-made hunger drug is used by a serial killer... I mean, what else are horrible drugs like this good for?
In the morning I found James in bed with empty bread loaf wrappers, teeth marks on his alphabet blocks and badly broken teeth. His throat was full of bread. He could have choked.
In the doctor's office the nonstop eating continued. He ate the bandage and cotton ball taped to his arm before anyone could stop him. He took the doctor's ink pen and bit it so hard you could hear his molar pop. The insane eating stopped once the drug was out of his system. GEODON is not a sleep aid. It does horrific damage to disabled people who are given it routinely "off label" as a sleep aid.
GEODON did not help him sleep but it did cause the roots of all his teeth to be exposed and he has been dealing with that pain ever since while mom arranges the financing for a full mouth restoration, since this common damage caused by use of very expensive "Off-Label" drugs is not covered by the insurance that DOES pay for the drugs that cause the damage. A year after the GEODON disaster, an Emergency Room doctor insisted on giving James GEODON again...and before James left the ER, the insane eating began. One dose was enough to disrupt his normal bodily functions. It took days for him to regain his equilibrium.
TRAZODONE was pushed at us for YEARS by doctors at UCLA, The Achievability Clinic in Culver City and other clinics....when it was finally administered by the Achievability Clinic, it did not help James sleep better. After all, James has exposed dental nerves...not much is going to help that pain except repairing the teeth, which is not an option his insurance will consider.
TRAZODONE caused his penis to engorge with blood. The fancy name for it is "priapism". James screamed for three weeks. He could not sit down. He could not stop pacing. The Achievability Clinic recommended that I TRIPLE the dose. CVS Pharmacy, who knew James well over the years, said, "NO!" They had never seen him so distressed and tripling the dose did not sound like the right thing to do.
Why were so many doctors at so many unrelated clinics pushing TRAZODONE as a sleep aid?
OK, so the nerves in all your teeth are visibly exposed and now your penis hurts like hell. What does the emergency room do to help you? They note you are "autistic" so they give you 8mgs of ATIVAN and tell your mom you need to be on ATIVAN for the rest of your life. You lose control of your bladder and bowels because of the ATIVAN. You dehydrate and the ER gives you a massive dose of BENADRYL and the next day you faint. You faint 5 times. No one knows why you are fainting.
Mom starts saying "NO MORE MEDICATION! Wean James off the ATIVAN before it kills him."
James goes off the medications and stops fainting. No more 3:00 am ambulance rides to the ER. But it's not easy to keep him off dangerous medications. For example, the massive shot of BENADRYL was given to James without mom's knowledge. Mom found out a month later when Medicare sent a document that listed the medications given to James. That pretty much explained that episode of fainting....a dehydrated person was given a massive dose of BENADRYL instead of liquids to drink, instead of an IV. The whole focus was askew because James is autistic. The focus was... "what psych med can we give this AUTISTIC person next"... instead of ..."what does his body need now? He is dehydrated. Fluids..."
It puzzles the brain to consider the cyclic thinking that has health care in the USA tied in these knots. An autistic person is in greater danger of getting too many inappropriate medications. But you, dear friends, are also in danger of the over-kill, the use of in appropriate medications is an epidemic in the USA. The nonstop pharmaceutical TV commercials that drone day and night in our homes as well as over speaker systems in our grocery stores are evidence that something unhealthy and unbalanced is afoot.
You can help me just by listening to this unfold. I know I'm not alone. You are out there. That calms me down. Who wants walk into Mordor all alone?
Fellowship makes it easier to deal with this. You, gentle readers, helped me save my house when OCWEN snatched it without warning just by being there. I couldn't have done it without you. Before the days of social media I probably would have just dropped dead from the shock. It was too overwhelming. But now, bolstered by the fact that I knew people were aware of my effort to save our house, I ventured forth and we got our house back.
Just knowing that I would report my actions back to you prevented me from shaking too much in my boots, wetting my pants and fainting from the fright....I wanted to have something decent to report back to you. Truly, thank you for being there (OCWEN housing crisis) and here (medication crisis).
Maybe I can help you by sharing some information so you can give your doctor the fisheye if he or she tries to paralyze your internal organs just because you have a common cold. Read on, gentle readers, together we shall survive the twists and turns of health care in the USA.
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