X-RAYS TAKEN BY DR DORFMAN SHOW EXPOSED NERVES

In 2015 Dr. Dorfman took these X-rays of James' teeth. You can see how the nerves are exposed.
You can also see where one tooth was lost while waiting in vain (on a waiting list) for treatment from sources that accept James' insurance.

The badly infected tooth was removed, but not by any of the dentists who accepted James' insurance.

Most of you are too young to remember the movie MARATHON MAN, the 1976 suspense thriller where Dustin Hoffman is tortured by a Nazi war criminal who is living off diamond sales and asks over and over, "Is it safe?" while he pokes Hoffman's dental nerves. This is considered one of the worst forms of torture and yet this has been James' reality for nearly a decade now. James has had broken teeth that cause this sort of excruciating pain.

The question now is: "Is James well enough for the four surgeries (at least) that it will take to repair his teeth? Is it safe? Will it be ok to do the surgeries in the dental office or should it be in hospital? Which hospital?

Suzy, at Dr. Dorfman's recommended UCSF School of Dentistry Prosthodontics. (...Before we were given the boot. Dr. Dorfman's office made it very clear that they would not clean or X-ray or examine James' teeth any more and Dr. Dorfman would NOT give any recommendations to James.) I contacted local referrals first. It will be a lot more costly to travel to San Francisco and reside there until the treatment is complete but if James' health continues to spiral downward, that in hospital option may be the only option that is safe.

At this time I am fundraising for the local, less expensive, in office treatment. Last week I attempted to get a personal loan but the damage done by OCWEN to my credit score is still not repaired and I have to stop trying to get the loan until OCWEN repairs the harm they did to my credit. If I continue to try to get a personal loan I will only lower my credit score more. I have a six year perfect payment history on my OCWEN home loan. Unfortunately that history is not showing on Equifax due to recent activity by OCWEN which is a matter of public record (OCWEN snatched our home, bank owned it and then rescinded...which demolished my credit score). I was well on the way to getting James' dental surgeries financed when OCWEN knocked us for a loop, totally out of the blue and in spite of my 6 year long perfect payment history.

Maybe OCWEN will consider coming to James' rescue in this matter since their actions had such a profound negative impact on James' life and their efforts to repair our credit are not swift.

If James needs to have these surgeries in hospital, I would like Mr. Ronald Faris, CEO of OCWEN to seriously consider covering the costs so that James can have this done immediately, as soon as his health permits. James looks horrible and he feels horrible.

CC: Mr. Ronald Faris, CEO of OCWEN

PS: In spite of my outrage towards Dr. Bill Dorfman's recent behavior towards my autistic son James, I am profoundly grateful to him for taking these X-Rays of James teeth in 2015 and giving me this tool to let James doctors understand the pain James is suffering. The dental clinics that accepted James' insurance said it was impossible to X-ray James teeth and did not clean his teeth or X-ray them on any of the many appointments I took James to. After each of those disappointing visits I would make an appointment at Dr. Dorfman's office and pay for the cleanings and X-rays that I could not get done for James using his insurance.

These X-Rays by Dr. Dorfman prevented James from being slammed with psych meds every time the pain flared up.....not counting the Little Company Of Mary ER that wanted to zap James because their resident drunk was using the ER to recuperate and rest up for his next drunk and threatened to smash James' face if he didn't stop crying in the emergency room and interrupting the drunk's nap. 

An autistic person who's teeth have been damaged by medications is likely to be given even more life threatening medications to shut them up if they cry from CHRONIC, UNTREATED dental pain. Insurance covers all these dangerous drugs that kill so many American's every year, but it doesn't cover tooth damage caused by medications.

~ TO BE CONTINUED ~

PULLING A DORFMAN, A NARCISSISTIC RESPONSE TO A MEDICAL CRISIS

There is a new phrase, new medical terminology called, "PULLING A DORFMAN" It's not a good thing. It's a verbal monument to a narcissistic choice made in a medical crisis.

I pitted some cherries for James. He hasn't moved all morning. He looks like he is in pain. I gave him an Advil.

He has medical appointments this week. Last week his primary care doctor, Dr. Curls said to take James to the dentist to see if that was why his face looked swollen on one side. She said to remind the dentist that he didn't have to fix anything, just let us know what was going on. We NEED to know what is going on.

Dr. Dorfman has been cleaning James' teeth since 2012. On James' last visit he only got a cleaning, no X-rays and no exam by the doctor. We were on the way to James' scheduled cleaning at Dr. Dorfman's on Friday when Dorfman's office called and said not to bring James in. That was such a shock that when OCWEN called to report their progress on restoring my credit by reversing the pulling of my perfectly paid home loan and putting it back on Equifax and OCWEN asked if I was available on Wednesday, I said yes, early in the morning because mid-morning the social worker who "PULLED A DORFMAN" was coming to take the annual update on James' medical conditions and what medications he is taking. She had also canceled James' appointment the same day of the appointment on March 24, 2016. James was bedridden on that day like he is today, May 9, 2016.

PULLED A DORFMAN is when a professional person cancels an appointment while you are en route to said appointment. A DORFMAN is usually pulled on a person of modest income who always pays their bills on time but has to get a loan or fundraise for expensive surgeries. You pull a DORFMAN on a patient who always pays for dental cleanings and X-rays the day they happen but can't shell out $64,000. without batting an eye. The sicker a financially ungifted patient suddenly becomes, the more entitled such professionals feel to PULL A DORFMAN. As previously mentioned, months ago after James had a dental cleaning and got into the elevator with Dr. Dorfman, Dr. Dorfman looked like he had swallowed a big bumble bee. The mere sight of James was too upsetting to Dr. Dorfman.

I need to say this again: I always paid for James' dental cleanings the day of the cleanings. I paid in full with my CareCredit Card from Synchrony Bank. James was not a charity patient. On Friday Dr. Dorfman's office refused to examine James, refused to let me pay with my CareCredit card with the $3000.00 credit limit. The cost of the exam would have been covered by that limit. James' primary care doctor just wanted to know if James had a dental infection causing his face to look the way it did, the way it does now.

In life, if we are what we do and the things we do are big enough to leave a big impression on others, sometimes monuments to our deeds get named after us.

If someone tells you that you have PULLED A DORFMAN, you probably hurt someone. You probably disrespected them. You probably behaved in a narcissistic way, thinking more of your own personal distaste over having to look at an ill person who could only afford preventative care than of what that person really needed from you, which was much less than you fear.

If Dr. Dorfman let James have an exam on Friday, I would have paid for it in full on Friday and Dr. Curls would know what step to take next to help James.

In Dr. Dorfman's mind there were fears great enough to warrant his PULLING A DORFMAN on James on Friday. Stop the car. Turn around. You shall not pass. Go away. Don't bother to come in, your appointment is canceled. Not going to tell you if you have an infection or not. It doesn't matter that you always pay your bill on time. Go. Go on now. Git.

ELON MUSK BUILT A SPACESHIP FOR DR.BILL DORFMAN, THAT IS MY STORY

This photo was taken during a UCLA visit on May 5, 2016. The UCLA doctors that James is seeing know that this is happening to James about three weeks out of each month. They don't seem very upset or concerned that James looks like this. His eyes look strange. One eye appears to be rolling back into his head. So far UCLA doctors seem so relieved when a test shows that it is NOT what they are testing for. They seem so happy about what it IS NOT that they seem to forget and stop discussing the fact that he feels horrible and looks horrible.

I'm glad that the pancreas CT shows that the previous lesion siting was probably a shadow. But I'm not HAPPY because I see James is suffering....that his experience today is pain.

James has a very bad dental problem that his insurance has not helped him resolve. I began a fund raiser to pay for the four dental surgeries he will need. It is frightening to me that none of the dentists we have consulted believe the dental pain is what is making James bedridden. I am frightened that James may be too ill to survive surgery. He is in bed now and he looks awful. I express my concerns to UCLA on almost a daily basis. 

It feels to me that UCLA is taking the position that if they don't know what is causing James to be bedridden, then it's  probably not important. They act like this is not happening. I guess they are all thinking this has to be his teeth causing him to feel this bad. Sometimes it feels like doctors see teeth as not part of the body....like shoes, like they don't interact with the brain, heart and other parts of the body and if it's dental, it's not their concern. I think dentists and doctors needed to work together more.

James stays in bed almost three weeks out of each month. Here is a photo from this week. He is under his favorite blanket holding his head. He doesn't even get up to play with his toys. He found a way to make a tray out of a toy box lid so that he can have his favorite toys in bed with him.

James has teeth that were destroyed by the off label use of a medication to help autistic people sleep better. It did not help him sleep. It made him ill and destroyed his teeth.

I believe his teeth hurt enough to make him stay in bed, but I also think something else is happening because of the YEARS he has had severely broken teeth with exposed nerves. I believe James has a COMPLICATION from having an untreated dental problem. A complication that may make his dental surgeries dangerous if the complication is not factored in.

 The dentists who accepted James' insurance did nothing at each of his dental appointments since 2012. 

The one good thing was that each time I took James to Rancho Los Amigos dental clinic, each time they failed to do X-rays and cleanings, I would call Dr. Bill Dorfman's dental office and use my CARECREDIT credit card to get James cleanings and X-rays. 

At least James was getting his teeth cleaned and he liked Suzy. At least we were stopping the teeth from rotting. They were broken but we didn't have to let them rot while trying to arrange the dental restoration. We could keep them clean and decay free.

 Suzy was able to clean his teeth without using ATIVAN or any sedative. James got to know and trust Suzy and he likes her. Rancho used ATIVAN and yet did no cleanings. The ATIVAN didn't help get anything done. ATIVAN only made James sick and made him lose control of his bladder, which in turn was humiliating for him. He couldn't take a short walk without losing control of his bladder before he could make it to a rest room. All that ended when Suzy cleaned his teeth. No more ATIVAN, no more bladder problem.

James had an appointment with Suzy this week, May 6, 2016. I kept telling James to hang in there, Suzy would clean his teeth and find out if there was an infection.

Video of Suzie cleaning James' teeth

At the last minute on the day of the appointment, Dr. Dorfman's office called and told us not to come in. They don't want to see James any more even though we always paid in full for the cleanings the same day of the cleanings for years. 

I am thankful that James does not know how Dr. Dorfman's office feels about him. James really liked having his teeth cleaned by Suzy and those cleanings are the reason why his broken teeth did not rot. 

James does not know he was dumped by Dr. Dorfman's office. This kind of thing happens to autistic people more often than you would like to think. 

For example, we were referred to a prosthodontist, Dr. Song, and for MONTHS I waited for Dr. Song to finish reviewing James' records. I faxed Dr. Song whatever he asked for. Still, Dr. Song acted sheepishly and sometimes bizarre. He would talk in a very faint voice and ask strange questions such as "what did we want?" as if he was confounded as to why we would be referred to him. 

I answered that we were referred to see if he would repair James' teeth. 

Dr. Song never let James come in for an exam. Each time we called he'd say he needs more time to think about it. I told James' UCLA doctors that it appeared Dr. Song was never going to respond with his decision. Four months have gone by. 

It looks like Dr. Song just doesn't want to say he doesn't want to do a full mouth restoration on an autistic person. It appears his method of rejection is to string the patient on, ask for endless documents to make it look like he is considering the case, claim to be thinking about it and hope we will take the hint from his silence when months go by without his making a decision. 

Fine. James doesn't need a dentist who acts so silly. James needs a skilled professional prosthodontist. Dr. Song reminded me of Michael Jackson parodies that I had seen...overly coy, sheepish, self-indulgent, paranoid, acting like someone is chasing him when no one is chasing him. James needs his teeth fixed. This drama from Dr. Song and Dr. Dorfman is stupid stuff.

I should have seen this coming. At the previous dental cleaning, only Suzy interacted with us, the dentists did not examine James or do X-rays. They peeked around corners as if they were all playing peek-a-boo or tag. Grown men were acting like they were hiding from patients. I suppose that was a hint of the upcoming drama. Dr. Dorfman looked like he swallowed a live bumble bee when the elevator door opened and we got in with him.

I'm not going to tell James that Dr. Dorfman and Suzy don't want to clean his teeth anymore. If James mentions Suzy, I'll tell him Dr. Dorfman and Suzy got in a space ship that Elon Musk built for them so they could clean EWOK teeth in a galaxy far far away....so we have to find someone else.

It's Mother's Day and my son is bed ridden, looking very ill. I'm not going to break his heart or crush his spirit by telling him the truth about why his dental appointment was canceled as we were headed there. (It would have been nice if they canceled BEFORE we were actually on the way.) James doesn't need to carry the weight. He has enough on his plate.

People say I have a sense of humor. If James asks about Suzy, I'll do a little dance, talk like ELMO and report that Suzie is cleaning teeth on another planet. Sometimes humor is all we have.

I hope UCLA does something on Monday. It feels very wrong that James is suffering like this.

James Is In Terrible Pain

I've started a fundraiser to help James.

He is in so much pain now. Please help if you can.

 
gofundme.com/painfreeJames